Comprehensive Management Packs
First Seizure Pack
This pack should be given to every child who presents with a first afebrile seizure. It contains a checklist of what to cover in first seizure presentations before a child is discharged home, safety information, seizure first aid, an event record for families to document any additional seizures, and a PENNSW flyer.
Epilepsy Management Pack
This pack should be given to every child with a new diagnosis of epilepsy. It contains a checklist of what to cover in newly diagnosed epilepsy, safety information, a First Aid Seizure Management Plan (to be completed by the Doctor for childcare, preschool, school, or respite centres), an Emergency Seizure Medication Plan (to be completed by the Doctor for children who require emergency seizure medication such as Midazolam), contact details for CPR courses (especially for families of children who require emergency seizure medications), an event diary for families to keep track of seizures, and a PENNSW flyer.
Emergency Seizure Management Documents
Paediatric First Aid SEIZURE MANAGEMENT PLAN for Parent/Carers and Schools
DOWNLOAD and SAVE a copy of the form on your local computer BEFORE FILLING IN, to ensure any changes you make can be saved. DO NOT complete the form online.
Paediatric EMERGENCY Seizure MEDICATION PLAN for Parent/Carers
DOWNLOAD and SAVE a copy of the form on your local computer BEFORE FILLING IN, to ensure any changes you make can be saved. DO NOT complete the form online.
Acute Management of Seizures
NSW Clinical Practice Guidelines, Infants and children: Acute Management of Seizures (algorithm pg 4). Publication date 07 June 2018.
Case Management of Children with Epilepsy
Personal Epilepsy Profile
This form is for patients/parents to enhance knowledge about their own diagnosis. It can be completed by patients/parents with the assistance of the treating clinician.
Event Record
This form is for patients/parents to document the nature of any future paroxysmal events in detail.
Administration of Buccal Midazolam for Seizures
- Video resource to educate families on the safe administration of buccal midazolam.
- Buccal Midazolam Administration (from RCH.org.au)
- Buccal Midazolam Administration (from Epilepsy Action)
- Article on Midazolam for Status Epilepticus (R. Smith & J. Brown, Australian Prescriber, 2017:40(1);23-25.)
Cardio Pulmonary Resuscitation (CPR) courses and resources
CPR Courses
The downloadable document includes a list of organisations who can provide accredited CPR training courses. The Children's Hospital at Westmead has also developed a free online program (CPR Training for Parents) to teach the steps involved in Cardio-Pulmonary Resuscitation (CPR) for a baby (aged less than 12 months) or a child (aged over one year). The online resource can be accessed by clicking here:
Driving Resources
Epilepsy Society of Australia - Driving Brochure for Patients
This document is available on the Epilepsy Society of Australia website. The Epilepsy Society of Australia is a professional organisation for clinicians, scientists and technologists involved in the diagnosis, treatment and research of epilepsy in Australia
Epilepsy Society of Australia - Epilepsy and Seizure Data Form for NSW patients
This document is available on the Epilepsy Society of Australia website. The Epilepsy Society of Australia is a professional organisation for clinicians, scientists and technologists involved in the diagnosis, treatment and research of epilepsy in Australia
Epilepsy Society of Australia - Epilepsy and Seizure Data Form for SA patients
This document is available on the Epilepsy Society of Australia website. The Epilepsy Society of Australia is a professional organisation for clinicians, scientists and technologists involved in the diagnosis, treatment and research of epilepsy in Australia
Mental Health Resources
Mental Health Handout
The Mental Health Youth Services Directory for patients and families provides contact details for a range of mental health services available in Greater Sydney and regional NSW. It also provides links to electronic resources and e-mental health programmes as well as phone numbers for agencies that provide support via telephone. The list is not exhaustive but should serve as a guide on resources available.